Grant received in 2025. CCC provides DKK 200,000 to continue the National Research Centre for late adverse effects following pelvic organ cancer as a national and interdisciplinary network.

The National Research Centre for late adverse effects following pelvic organ cancer was established in 2018 and has since played a central role in research, clinical development, and knowledge dissemination on late effects after various pelvic organ cancers.

The center has contributed significantly to strengthening the national response to late effects. With the establishment of a systematic screening programme and a national database including more than 4,000 colorectal cancer patients, a solid foundation has been created for both research and clinical development. In addition, the centre has contributed to the implementation of interventions in specialised late effects clinics, the development of national clinical guidelines, and has had a clear impact on health policy, contributing to the scientific basis for Cancer Plan V and its emphasis on late effects after cancer.

With the new grant, the aim is to maintain and expand the national and interdisciplinary network and to ensure national coordination of new research initiatives. The work is organised into nine work packages, encompassing ongoing projects, new project ideas, and dissemination activities designed to strengthen research, collaboration, and patient involvement in this field.

The nine work packages include:
1. Maintenance and expansion of the national prospective screening database
2. Identification of PRO data as core indicators of late effects after cancer
3. Development of prediction models to forecast late effects
4. Strengthening of data sharing across sectors
5. Development and improvement of digital resources for patients
6. Implementation of late effects initiatives in follow-up programmes after cancer
7. SENECA – a national research project on late effects after cervical cancer
8. International collaboration on the development of a chatbot to answer questions about late effects after cancer
9. Investigation of the pathophysiology of bowel dysfunction following rectal cancer treatment

Project stakeholders

  • Peter Christensen, Professor, Consultant, Department of Surgery, Aarhus University Hospital. Primary contact, mail: petchris@rm.dk
  • Charlotte Hammer, Chairman, Senfølgeforeningen
  • Ole Thorlacius Ussing, Professor, Department of Gastrointestinal Surgery, Aalborg University Hospital
  • Lene H Iversen, Department of Gastrointestinal Surgery, Aalborg University Hospital , Danish Center for Cancer Surgery
  • Asbjørn Drewes, Professor, Department of Gastroenterology and Hepatology, Aalborg University Hospital
  • Katrine Emmertsen, Consultant, Clinical Associate Professor, Department of Surgery, Regional Hospital Randers
  • Ismail Gôgenur, Professor, Zealand University Hospital, Køge
  • Julie Blockmann, Consultant, Department of Surgery, Hvidovre
  • Jonas Funder, Consultant, Clinical Associate Professor, Department of Surgery, Vejle Hospital
  • Christoffer Johansen, Professor, Cancer Survivorship and General Late Effects (CASTLE), Rigshospitalet
  • Anders Husted Madsen, Chief Medical Officer, Surgical Department, Gødstrup Hospital
  • Peter Kissmeyer, Chief Medical Officer, Department of Surgery, Viborg
    Susanne Dalton, Professor, Danish Research Center for Equality in Cancer (COMPAS )
  • Claus Lindberg, Professor, Department of Molecular Medicine (MOMA)
    Marylise Boutros, Professor, Department of Surgery, Cleveland Clinic, Florida

Primary contact:
Peter Christensen
petchris@rm.dk