Grant received in 2023.
DCCC has funded 192.000 DKK to the initiative.
In Denmark, approximately 1,600 young adults aged 18-39 are diagnosed with cancer each year. Both international and Danish research have documented that this smaller group of cancer patients face complex challenges and have specific needs during and after cancer treatment. The combination of being in life-altering phase and having cancer causes complex challenges requiring a multidisciplinary approach to research.
Even though local research is conducted in Denmark on young adult cancer, a national research collaboration is needed to create a formal platform focused on addressing the challenges these young adults experience. Therefore, a group of clinicians and researchers in the field of cancer aim to establish a new network focused on research for individuals diagnosed with cancer in this age group. Ultimately, the vision is to integrate the network's knowledge and experiences with other networks addressing this target group, such as the Danish Psycho-Oncology Cooperative Group (DPOC).
The network intends to initiate several activities in the next two years. The purpose is to identify existing research projects on cancer in young adults, expand members' research networks, and discuss opportunities for future research collaborations across the country.
The group behind the application expects the network to contribute to knowledge sharing as well as advancement and improvement of research on and with young adults undergoing cancer treatment. The network is supported by DMCG.dk and the initiative "Ungkræft" (Young Cancer) under Danish Cancer Society.
Events
Netværksmøde 30.-31. oktober 2023
Multidisciplinary organisation
As the network spans across specialties and cancer types, it is not anchored in a Danish Multidisciplinary Cancer Group (DMCG.dk). The network is anchored at the Department of Oncology, Rigshospitalet.
Project stakeholder
The North Denmark Region
- Tarec Christoff er El-Galaly, Consultant and Professor, Department of Haematology, Aalborg University Hospital, and Department of Clinical Medicine, Aarhus University.
- Laurids Østergaard Poulsen, Consultant and Associate Professor, Department of Oncology, Aalborg University Hospital and Clinical Institute, The Faculty of Health, Aarhus University Hospital
- Helle Enggaard, Postdoctoral Researcher in clinical nursing, The Clinical Nursing Research Unit, Aalborg University Hospital
- Dorthe Østergaard Godiksen, Specialist Doctor, Department of Haematology, Aalborg University Hospital
Central Denmark Region
- Peter Hjørnet Kamper, Associate Professor and Consultant, Department of Haematology, Aarhus University Hospital and Department of Clinical Medicine, Aarhus Universitet
- Hanne Krogh Rose, Consultant, Department of Oncology, Aarhus Universitetshospital
- Marc Pilegaard, Occupational Therapist and Senior Researcher, DEFACTUM and Klinisk Social Medicin og Rehabilitering (Clinical Social Medicine and Rehabiltation), Regional Hospital Gødstrup
- Anette Borup, Nurse and Youth Coordinator, Department of Haematology, Aarhus University Hospital
Region of Southern Denmark
- Maria Aagesen, Physiotherapist and PhD Student, User Perspectives and Community-based Interventions, University of Southern Denmark
- Karen la Cour, Occupational Therapist and Professor, User Perspectives and Community-based Interventions, University of Southern Denmark
- Karin Dieperink, Nurse, Professor and Associate Head of Department of Oncology, Odense University Hospital and Clinical Institute, University of Southern Denmark
- Lars Dysager, Consultant, Department of Oncology, Odense University Hospital
- Lærke Røikjær, Anthropologist and PhD Student, Research Unit of General Practice, University of Southern Denmark
- Marianne Stangerum Thycosen, Nurse and Youth Coordinator, Department of Oncology, Odense University Hospital
Region Zealand
- Lise Søndergaard, Specialty Registrar, Coordinator, Department of Oncology, Zealand University Hospital
- Lise Bjerrum, Clinical Nurse Specialist, Clinic for Late Adverse Effects after Cancer, Department of Clinical Oncology and Palliative Care, Zealand University Hospital
- Mette Bergman, Nurse and Youth Coordinator, Department of Haematology, Zealand University Hospital
Capital Region of Denmark
- Helle Pappot, Consultant and Professor, Coordinator, Department of Oncology, Rigshospitalet and Department of Clinical Medicine, University of Copenhagen. Primary contact, e-mail: Helle.Pappot@regionh.dk
- Niels Smedegaard Andersen, Consultant, Department of Haematology, Rigshospitalet
- Kirsten Arntz Boisen, Consultant, Department of Paediatrics and Adolescent Medicine, Rigshospitalet
- Pernille Bidstrup, Psychologist and Senior Researcher, Danish Cancer Institute, Danish Cancer Society
- Annika von Heymann, Psychologist and Postdoc, Cancer Survivorship and General Late Effects, CASTLE, Department of Oncology, Rigshospitalet
- Line Bentsen, Medical Doctor and PhD Student, Department of Oncology, Rigshospitalet
- Maiken Hjerming, Nurse and Youth Coordinator, Department of Haematology, Rigshospitalet
The initiative "Ung Kræft"
- Christine Mandrup-Rehr, Volunteer Coordinator
- Sofie Bak Wraae, Specialist Consultant
- Louise Jespersen, Project Manager
Young Adults – representatives
- Daniel Isager
- Sari Cornelia
- Louise Jespersen