DCCC has funded 200.000 DKK to the project.
Survival after childhood cancer now exceeds 85%, yet a substantial proportion of survivors develop late effects with significant implications for long-term health, functional capacity, and quality of life. Given their long life expectancy, children, adolescents, and young adults treated for cancer require systematic, risk-adapted, and lifelong follow-up care.
The National Network for Late Effects after Childhood Cancer aims to strengthen the coordination of research, professional knowledge sharing and development activities relating to late effects in children, adolescents and young adults who have had cancer. Through national meetings and ongoing collaboration, the network will serve as a national, interdisciplinary forum for research, development and knowledge sharing on late effects after childhood cancer.
DCCC’s support will be used to establish and consolidate the network’s framework for research-related development, professional consensus and national knowledge sharing. Within this framework, the network will, among other things, initiate and strengthen joint research and development projects.
The expected professional benefit is a stronger national foundation for follow-up care for children, adolescents and young adults treated for cancer, with less variation in practice, greater interdisciplinarity and more coherent patient pathways.
Project stakeholders
Aalborg University Hospital
- Christina Friis Jensen, Senior Registrar, Centre for Pediatric Cancer
- Louise Torp Sørensen, Neuropsychologist, Department of Paediatrics
- Anna Julie Højsgaard, Psychologist, Department of Paediatrics
- Stine Højbjerg Lassen, Head Nurse, Centre for Paediatric Cancer
Aarhus University Hospital
- Louise Tram Henriksen, Specialty Registrar, Centre for Pediatric and Adolescent Cancer
- Kamilla Tofting-Olesen, Nurse, Centre for Pediatric and Adolescent Cancer
- Linda Ladegaard, Nurse, Centre for Pediatric and Adolescent Cancer
- Jane Evald, Neuropsychologist, Centre for Pediatric and Adolescent Cancer
- Akmal Safwat, Consultant, Radiation Oncologist, Department of Clinical Proton Therapy (DCPT)
- Yasmin Alexandra Lassen, Consultant, Radiation Oncologist, Department of Clinical Proton Therapy (DCPT)
Odense University Hospital
- Sine Lykkedegn, Consultant, Department of Paediatric Haematology and Oncology
- Fani Pørtner, Psychologist, Consultant, Department of Paediatric Haematology and Oncology Rikke Bassø Klokker, Nurse, Clinical Nurse Specialist-coordinator, Consultant, Department of Paediatric Haematology and Oncology
Rigshospitalet
- Christine Dahl Christensen, Consultant, Chair of DAPHO, Department of Late Effects after Childhood Cancer
- Sanne Udengaard Hjørlund, Nurse, Department of Late Effects after Childhood Cancer
- René Mathiasen, Consultant, Clinical Associate Professor, Department of Paediatric Haematology and Oncology
- Liv Andres-Jensen, Specialty Registrar, Department of Paediatric Haematology and Oncology
- Hilde Hylland Uhlving, Consultant, Department of Paediatric Blood Cell Transplantation and Immunology
- Lone Kjelsø Johansen, Nurse, Department of Paediatric Blood Cell Transplantation and Immunology
- Barbara Johanne Thomas Nordhjem, Psychologist, Department of Paediatric and Adolescent Medicine
- Aida Muhic, Consultant, Radiation Oncologist, Department of Oncology
- Casper Hagen, Consultant, Clinical Associate Professor, Department of Growth and Reproduction
- Hanne From Mathiesen, Specialty Registrar, Department of Oncology, Department of Clinical Proton Therapy (DCPT)
- Katarina Main, Professor, Head Consultant, Department of Growth and Reproduction
- Anne Maja Sandø, Neuropsychologist, Department of Paediatric and Adolescent Medicine
- Sofie Aamand Beyer, Neuropsychologist, Department of Paediatric and Adolescent Medicine Camilla Grud Nielsen, PhD Student, MD, Department of Paediatric and Adolescent Medicine
Other relevant stakeholders
- Eva Rosa Sansone Petersen, Consultant, Department of Neurology, Amager and Hvidovre Hospital
Interdisciplinary network
The network is anchored in close professional collaboration with Danish Society for Pediatric Hematology and Oncology (DAPHO) and the national paediatric oncology community, with representation from all four paediatric oncology centres in Denmark.