Grant received in 2022
DCCC has funded 200,000 DKK to the project
The prognosis for patients with multiple myeloma (MM) has improved markedly over the past two decades due to improved treatment options. However, patients with MM report impaired quality of life (QoL) and evidence based interventions to improve QoL are lacking.
In 2017, Danish Myeloma Study Group initiated the national longitudinal survey ’Quality of life in Danish multiple myeloma patients’. Inclusion of 685 patients terminated by the end of 2021. Each included patient have reported QoL 12 times during 2 years follow-up and the last data are now enrolling.
With this dataset, we will be able to identify QoL domains and time points where a targeted multidisciplinary intervention could improve QoL for patients with MM. In order to gain this valuable knowledge the QoL dataset needs to be combined with data from registries, scientifically examined, analysed and discussed.
Preparation for this work will be the focus of the two Ph.D. students during their 3 months period of pre-PhD.
Project stakeholder
Aalborg University Hospital
- Henrik Gregersen, MD, PhD, Department of Hematology
Aarhus University Hospital
- Anja Klostergaard, Chief Physician, Blood Diseases
Odense University Hospital
- Niels Abildgaard, Chief Physician Professor, Department of Hematology
- Louise Redder, 1st Reserve Physician, Department of Hematology
- Sören Möller, biostatistician, associate professor and Ph.D. at OPEN, Odense University Hospital and the Department of Clinical Medicine, University of Southern Denmark
Regional Hospital Viborg
- Lene Kongsgaard Nielsen, chief physician Ph.D. Clinical Associate Professor, Quality of Life Research Center, Hematology Research Unit and Research Unit for Multiple Diseases, Medical Department and Heart Diseases. Primary contact, e-mail: lene.kongsgaard.nielsen@rsyd.dk
Gødstrup Regional Hospital
- Morten Saaby Steffensen, chief physician, Department of Blood Diseases Rigshospitalet (incl. Formerly Herlev Hospital)
- Anne Kærgaard Mylin, MD, PhD, Department of Blood Diseases
- Carsten Helleberg, Chief Physician, Department of Blood Diseases
Zealand University Hospital
- Bo Amdi Jensen, Chief Physician, Department of Hematology
Southwest Jutland Hospital Esbjerg
- Per Trøllund Pedersen, chief physician, Blood Diseases
Hospital Lillebealt Vejle
- Maja Hinge, Chief Physician, Hematology Section
Hospital Southern Jutland - Sønderborg
- Mikael Frederiksen, Chief Physician, Blood Diseases Outpatient Clinic
University of Copenhagen
- Mary Jarden, nurse and professor of hematology, clinical nursing and symptom management at the Department of Clinical Medicine University of Copenhagen